About the data intro
DataLoch brings together routinely collected health care data from primary and secondary care in the Lothian region covering a population of 900,000 people. These data enable researchers to answer important questions about how the wellbeing of people could be improved, and support service-management decisions within the NHS.
There are many examples of how health data research has delivered insights to help solve challenging health problems, including diagnosing rare diseases, improving the performance and equity of care, identifying diseases early, and assessing the effectiveness of health services. Data extracts approved for researcher access are minimised, which means we provide no more data than the minimum needed to fulfil the specific approved application.
Preparing the data
DataLoch works with data in several ways, including:
- collaborating with clinicians to improve the data quality;
- linking datasets to enable broad insights;
- translating data into common standard definitions; and
- maintaining a high-quality metadata catalogue with the support of NHS expertise.
Accessing the data we host
The below datasets are linkage ready. If you don’t see the data for your research here, please contact us to either request access to our complete Metadata Catalogue or to start a discussion about bringing the relevant data together to support your proposal development.
About the data - lower section
DataLoch Registries
A DataLoch Registry offers a theme-specific database of South-East Scotland residents, usually defined by one or more related conditions or diseases. The DataLoch team collaborates with the theme-specific academic and clinical experts to process the raw data, fully understand the data and improve reliability, to address inconsistencies and make them research-ready.
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Respiratory |
Focused on South-East Scotland residents with acute and chronic respiratory conditions, specifically COPD (Chronic Obstructive Pulmonary Disease) and ILD (Interstitial Lung Disease). This registry aligns with respiratory registries hosted in England (CPRD) and Wales (SAIL Databank), thereby offering significant opportunities for researchers wishing to explore questions across the three nations. | |
| Cancer | Covers the full cancer patient pathway from initial diagnosis, including progression and recurrence, treatments (chemotherapy, radiotherapy, surgery and others) and patient outcomes. | |
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COVID-19 |
A combination of COVID-19-related data, such as laboratory test results, symptoms, treatments, complications, vaccinations and hospitalisation outcomes. |
Demographic information
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DataLoch Demographics |
Information about the statistical characteristics of people resident or using health care services in the Lothian region. DataLoch combines information from different sources to improve the quality of data. | |
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Scottish Index of Multiple Deprivation (SIMD) |
Summary data capturing the relative deprivation status of geographic areas of Scotland. Including this information in research takes into account the relationships between living in specific areas and health. |
DataLoch-curated datasets
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Observations |
A collection of lifestyle information, risk scores and measurements that can impact health. DataLoch processes data from many sources to improve the reliability and relevance of data for research. | |
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Health Conditions |
The DataLoch team has, where possible, combined the codes used by GPs, hospital/facilities, and national records to summarise patient conditions, based on the defined standards from the HDR UK Phenotype Library. | |
| Geospatial (location-related) | Links with climate and pollution measurements, as well as proximity to urban green (parks and gardens) and blue (canals and rivers) spaces. Can also link to socioeconomic data (above) plus care services (such as care homes) in Lothian. |
Primary care datasets
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GP Registrations and Demographics Albasoft |
Information on GP registrations in the Lothian region, including population statistics. | |
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GP Clinical Events Albasoft |
Codes used by GPs to summarise such things as symptoms, examinations, observations, test results, screenings, vaccines, operations, therapeutic procedures, and diagnoses, as well as administrative items such as recording reports. | |
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In-hours GP Activity Albasoft |
All patient encounters with GP practices, either indirect or direct. |
Secondary care datasets
| Electronic Health Records | ||
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Hospital Demographics TrakCare |
Information about the characteristics of people using NHS Lothian hospitals or facilities. | |
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Hospital Emergency Attendances TrakCare |
Arrival and discharge details from all Emergency Attendances in NHS Lothian, covering Accident and Emergency departments, Minor Injury units, and Obstetrics Triage. Includes dates, times, incident circumstances, triage details, and referral and discharge information. | |
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Hospital Admissions and Discharges TrakCare |
Information about admissions and discharges from any NHS Lothian hospital or facility, including dates, times, specialties involved, and reason for admission. | |
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Hospital Patient Movements and Transfers TrakCare |
These datasets capture patient journeys through NHS Lothian hospitals or facilities. | |
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Critical Care WardWatcher |
Data relating to patients requiring critical care treatment (i.e. in intensive care and high-dependency units), such as admissions, severity of illness, organ-support treatments and therapies, and outcomes of treatment. | |
| Scottish Morbidity Records | ||
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Outpatient Attendances Scottish Morbidity Record (SMR00) |
Information about outpatient attendances at any NHS Lothian hospital or facility, including dates, times, conditions and procedures. | |
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General and Acute Services Scottish Morbidity Record (SMR01) |
Information about general and acute attendances at any NHS Lothian hospital or facility, including dates, times, conditions and procedures. | |
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Maternity Services Scottish Morbidity Record (SMR02) |
Information about maternity inpatient and day cases at any NHS Lothian hospital or facility, including dates, times, conditions and procedures. | |
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Mental Health Services Scottish Morbidity Record (SMR04) |
Patient records relating to all inpatients and day cases admitted to, and discharged from, mental health facilities in NHS Lothian. | |
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Scottish Cancer Registry Scottish Morbidity Record (SMR06) |
Record of cancer episodes at any NHS Lothian hospital or facility. Each record covers a separate primary cancer registration and comprises patient data, diagnosis, pathology, staging, and treatment information. Also includes dates, primary and secondary cancer, and any information from a corresponding death record. | |
Prescribing datasets
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Community Public Health Scotland |
Summary of prescriptions that are dispensed in the community (i.e. not within hospitals) throughout the NHS Lothian region. | |
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Hospital discharge HEPMA |
Summary of prescriptions dispensed at the time of patient discharge from NHS Lothian hospitals. |
Diagnostic tests and investigations
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Laboratory results TrakCare |
Covering both primary and secondary care, this includes laboratory test results undertaken in NHS Lothian’s haematology, biochemistry, and microbiology labs. | |
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Pulmonary Function Tests RespNet |
Lung function tests to support the diagnosis and treatment of lung conditions. | |
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Cardiac Surgeries and Procedures TOMCAT |
Information about all cardiac (heart) surgeries and less-invasive procedures completed within the NHS Lothian region. |
Cancer
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Systemic Anti-Cancer Therapy (SACT) ChemoCare |
A South-East Scotland regional dataset taken from the ChemoCare prescribing system. Includes chemotherapy, immunotherapy, and other drug treatments for cancer. | |
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Radiotherapy AIRA |
A South-East Scotland regional dataset taken from the AIRA radiotherapy planning and delivery system. Includes dosing, fractionation, and related metadata and images. | |
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National Cancer Quality Audit and Cancer Registration datasets |
Includes a number of tumour-specific datasets based on relevant data collated from across Scotland. Within each of these datasets are details such as tumour type, recurrence, treatments, and staging. |
Linked national datasets
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Cause of death National Records of Scotland |
Nationally curated data showing the date and cause(s) of death. |
About the data last paragraph
