Our understanding of life after brain tumour diagnosis is limited. Healthcare professionals often see brain tumour patients at the time of investigation or treatment, therefore only seeing snapshots of a patient’s life. Accurate description of life after brain tumour diagnosis is important to detect behavioural patterns that may be associated with deterioration and to inform research studies. The Brain Tumour Charity developed an online app accessible by computers and mobile phones called BRIAN that allows patients and their carers to share their information on events and quality of life over time. This provides a unique opportunity to study how aspects of life changes and how these changes may correlate with clinical events. This study will summarise the characteristics of people submitting data through the BRIAN app and use the data to describe the quality of life over time. We will also examine how the journey after brain tumour diagnosis may differ depending on the tumour type and treatment received. Findings from this study will help clinicians, patients and their carers to better understand and prepare for life after brain tumours diagnosis, and our results will generate more research questions to improve brain tumour experience.
Other Projects
UPRN seeding in CHI-addressesDr Huayu ZhangNon Covid-19 Project
Where people live in households or neighbourhoods is closely associated with a range of socio-economic and other factors. Many such factors are key to ans...
Diagnostic performance of the combined nasal and throat swab for COVID-19Professor Nicholas MillsCovid-19 Project
Uncertainty remains as to the diagnostic performance of the combined nasal and throat swab, particularly in patients presenting late following the onset o...
