DataLoch has swiftly established a new data service by working in close partnership with a Clinical Team spanning different health specialisms across NHS Lothian who bring clinicians’ perspectives. Their combined knowledge ensures the quality of our datasets and help us to produce meaningful metadata. Metadata is important as it explains the characteristics of data for researchers, for example describing where data has come from.
The Clinical Team continues to support DataLoch’s development, giving a clinician’s perspective to prioritisation and project approvals. They are also part of our data cleansing process, validating clinical definitions and data standards.
COVID-19 Collaborative contributors
In March 2020, DataLoch was asked by NHS Lothian to focus on supporting the immediate healthcare response to the COVID-19 pandemic. The rapid collection and linkage of data as part of the COVID-19 Collaborative was made possible due to the extensive efforts of an interdisciplinary team.
Public Reference Group
DataLoch has engaged with volunteers who have formed our Public Reference Group. The group consists of members of local communities, all with different backgrounds and areas of interest. It is early days for the group, but it is rapidly becoming a crucial voice in our development: the group is influencing processes, providing ideas for further development, and forming a critical part of our project-approvals.
Whilst we acknowledge that no one group of individuals can be fully representative of society, the group plays a valuable role in evaluating projects in terms of assessing potential benefits for society. Members also provide advice on engaging with society more broadly, including reviewing our communications to ensure we keep our language accessible.
We currently have nine members in the group with ongoing recruitment. Please contact us if you are interested in joining.