The DataLoch service works closely with a Clinical Team spanning different health specialisms across NHS Lothian who bring clinicians’ perspectives to the data being hosted and used. Their combined knowledge ensures the quality of our datasets and help us to produce meaningful metadata. Metadata is important as it explains the characteristics of data for researchers, for example describing where data have come from.
The Clinical Team ensures there is clinical input to our further development and our project-approvals process. They are also part of DataLoch’s data cleansing and curating process, validating clinical definitions and data standards.
COVID-19 Collaborative contributors
In the early part of our development (March 2020), in response to the needs of our NHS Lothian partners, the DataLoch team focused on supporting the immediate healthcare response to the COVID-19 pandemic. The rapid collection and linkage of data as part of the COVID-19 Collaborative was made possible due to the extensive efforts of an interdisciplinary team.
Public Reference Group
DataLoch has engaged with volunteers who have formed our Public Reference Group. The group consists of members of local communities, all with different backgrounds and areas of interest. Group members form a critical element of our work: they influence our operation, providing ideas for further development, and are an active part of our project-approvals process including through supplying public value assessments of proposed projects.
Whilst we acknowledge that no one group of individuals can be fully representative of society, the group plays a valuable role in providing a public perspective on assessing potential benefits for society. Members also provide advice on engaging with society more broadly, including reviewing our communications to ensure we keep our language accessible.
We currently have seven members in the group with ongoing recruitment. Please contact us if you are interested in joining.